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Showing posts from December, 2025

Week 6 - The Last week of Treatment 🔔

I was going to do another run through of each day this week like previous weeks but I A. Forgot to take notes this week. And B Can't fucking remember what happened and when. So ill just summarise best I can.  The final countdown to treatment finishing!  I remember looking at Thomas's appointment sheet 6 weeks ago and it was 3 double-sided A4 pages, stapled together with row after row of dates and times and thinking - "this is so much" 😩 it felt like an eternity away. Treatment ending, as monumental as it is, is not the joyous occasion it should be.  The main man has got through this week like a champion given how bad things are. Hes been on his knees at times, completely defeated and hopeless but he pulls it back each time.  Hes completely reliant on his feeding tube now, even for medicine as the tablets get stuck in his throat, which is hellishly swollen and agony to swallow. I feel like all we do all day is syringe him full of something. Paracetamol at 8, 12, 4, 8...

Week 5 - The week he nearly threw the towel in 😔

Im disorganised today. Im still up at Dawn's crack and I know i need to get moving but motivation is evading me. Desperately need a shower and my hair is bogging but instead, I sit, as I do most mornings, drinking coffee, looking at different forums for any tips and advice I might have missed, and to see if i can get anything that might help with the healing process/pain/dry mouth/mucus/nausea 😭  I order some Xylimelts for his dry mouth. Little minty things that stick inside your lip on your gum that help stimulate saliva. They can be used when sleeping too so they go straight in ma basket. Some L-Glutamine powder. Lots of people in America use a product called Healios, but its about £60-£80 a tub to buy. A lovely lady on one of the groups lets me know that they dont get Healios in Oz either, but the main ingredient is L-Glutamine, which can help to reduce the severity of mouth sores because it aids the healing process somehow. I figure it cant help to add a spoon of it to his sal...